“Goals of Care” decision aid for families of patients

ABOUT US

Team:

Susanne Muehlschlegel, MD, MPH, FNCS, FCCM, FAAN	Principal Investigator (PI)	UMass Chan Medical School
Bengisu Tulu, PhD	Principal Investigator (PI)	Worcester Polytechnic Institute
Christopher Lee	Medical Student Researcher, Class of 2022	UMass Chan Medical School
Lauren Vilchinsky	Clinical Research Coordinator	UMass Chan Medical School
Adam Kalayjian	Research Developer	Worcester Polytechnic Institute
Carlie Flanagan	Research Developer	Worcester Polytechnic Institute

Funding Source:

National Institutes of Health / Eunice Kennedy Shriver National Institute for Child Health and Human Development, Grant 5K23HD080971

Publications:

Khan MW, Muehlschlegel S. Shared Decision Making in Neurocritical Care. Neurol Clin. 2017 Nov;35(4):825-834. doi: 10.1016/j.ncl.2017.06.014. Review. PubMed PMID: 28962816.
Quinn T, Moskowitz J, Khan MW, Shutter L, Goldberg R, Col N, Mazor KM, Muehlschlegel S. What Families Need and Physicians Deliver: Contrasting Communication Preferences Between Surrogate Decision-Makers and Physicians During Outcome Prognostication in Critically Ill TBI Patients. Neurocrit Care. 2017 Jul 6. doi: 10.1007/s12028-017-0427-2. [Epub ahead of print] PubMed PMID: 28685395.
Cai X, Robinson J, Muehlschlegel S, White DB, Holloway RG, Sheth KN, Fraenkel L, Hwang DY. Patient Preferences and Surrogate Decision Making in Neuroscience Intensive Care Units. Neurocrit Care. 2015 Aug;23(1):131-41. doi: 10.1007/s12028-015-0149-2. Review. PubMed PMID: 25990137; PubMed Central PMCID: PMC4816524.
Muehlschlegel S, Shutter L, Col N, Goldberg R. Decision Aids and Shared Decision-Making in Neurocritical Care: An Unmet Need in Our NeuroICUs. Neurocrit Care. 2015 Aug;23(1):127-30. doi: 10.1007/s12028-014-0097-2. PubMed PMID: 25561435; PubMed Central PMCID: PMC4806789.
Goals-of-care decision aid for critically ill patients with TBI: Development and feasibility testing. Muehlschlegel S, Hwang DY, Flahive J, Quinn T, Lee C, Moskowitz J, Goostrey K, Jones K, Pach JJ, Knies AK, Shutter L, Goldberg R, Mazor KM. Neurology. 2020 Jul 14;95(2):e179-e193. doi: 10.1212/WNL.0000000000009770. Epub 2020 Jun 17. PMID: 32554766; PMCID: PMC7455326.
Adapting a Traumatic Brain Injury Goals-of-Care Decision Aid for Critically Ill Patients to Intracerebral Hemorrhage and Hemispheric Acute Ischemic Stroke. Goostrey KJ, Lee C, Jones K, Quinn T, Moskowitz J, Pach JJ, Knies AK, Shutter L, Goldberg R, Mazor KM, Hwang DY, Muehlschlegel S. Crit Care Explor. 2021 Mar 9;3(3):e0357. doi: 10.1097/CCE.0000000000000357. PMID: 33786434; PMCID: PMC7994105.